I felt
better this morning and had a fairly productive first half of the day, but my
stomach swelled up again in the late afternoon, and I’ve been battling nausea
and reflux since. It’s so frustrating and lonely that nobody around me
understands what I’m going through. This is partly my fault, because I don’t
talk about my illness very much, but the handfuls of people whom I have shared
my stories with usually forget about it or avoid the topic like the plague. Their
reactions make me feel so uncomfortable and awkward. When people see me “off”
or in pain, they don’t know how to react, and they turn away or change the subject. Nobody
wants to hear that it’s not getting better and that there’s nothing they can
do. I wish they could understand that all I really want is a little sympathy… a
hug, or a “that sucks”. IT’S OK TO TALK ABOUT IT.
My mom is
too stressed out with Christmas guests and party plans to talk, so I don’t have
my usual long-distance support either.
I hate times
like these.
I feel sick
and fatigued, but I’m too symptomatic to sleep. My mind needs to shut off so time
can soothe my digestive tract, but the stubborn derps are too busy shooting up
gastric acids and leftover lunch to allow me to rest. I can’t concentrate on
anything—even movies—and I’m constantly dissatisfied with the temperature—it’s
always either too hot or cold. It will be another long, bad night.
That said, tomorrow
will be better. I’ll wake up and sip at baby food, Boost, and smoothies. I’ll
try to walk around a bit. Hopefully my stomach will get with the program and
stay functional all day. My parents ask what I want for Christmas, and the only
thing I truly want is my health. I don’t care how sappy or melodramatic that
sounds. In less than a week it will have been a full year since my full-time onset
of gastroparesis, and my greatest wish is that this unwelcome idiopathic visitor
won’t stick around for another year. You’re not welcome here, gp and gerd.
No comments:
Post a Comment